Hi,

I am putting together this page to centralize some of the data on the internet about  Trigeminal Neuralgia aka tic douloreaux.  I have TN or some related version and Temporomandibular-Joint-TMJ
I took 2nd  MRI and a MRA  on Sat. Aug. 28, 2004. The only positive item discovered during those expensive tests   was a pinched nerve resting on the spinal column. Medically the report said.  Moderate spondylosis and annular bulging are present form C3-4 thought C 6-7, most serve at C 3-4.  A 45 minute EMG  determined that that  problem was of minor concern for a nerve in the leg.

After reading the information about Trigeminal Neuralgia from the web I have located something about a problem I have had since May 2004.   Reading about TN was depressing but consoling in that I am  not alone with these inside the head pains. They are not a figment of my imagination.

Trigeminal neuralgia  is universally known as the most painful affliction know to medical practice. It is not fatal but the nature of it can be suicidal.  If you or a loved one has something similar to this disease  write something about it and send it to me.  If you want I can publish it on this website. Please remind me to list your story. My first visit to a neurologist Dr. R.  was in July  2004. A prescription for Flexerel was given. After a week I determined that it may be the source of a very itchy rash on the right side of my neck. I stopped taking the medication and the rash went a way. Then I was given Neurontin.   9-13-04  my dosage was increased to 1800 mgs of Neurontin. I didn't think the 1800 mg was doing me any good. On 9-24-04 it was increased to 3000 mg (5  600 mg pills / day.) It It did not seem to be doing any good. I still received  significant jolts to the left side of my face.

I had appointment  with Dr. R is Oct 6, 2004. As usual I had to  wait an hour and then I finally had to leave for another commitment without seeing Dr . R  I  had been treated by Dr. .R since July  and my pain had not seem to be diminished. I located a specialist Dr. K   Oct. 20, 2004. I  was then  put on 600 mg of Neurontin and  600 mg of Tegretol.  It has significantly reduced my electrical jabs. October 28 I had a dental appointment  for a routine cleaning. I mentioned my TN problems as my jaw ached considerably. I could not open my mouth easily for the hygienist to easily work on  my teeth. Dentist  Dr. TR suggested  I considered us of a TNI device to prevent Bruxism, ie teeth grinding. It may be  the cause of my very aching  jaw pain  which destroy my will to focus very long on anything. The thousands of electrical jabs in the  middle of the night  may have overworked those poor jaws causing me to tighten down on my teeth. I purchased the TNI.  You can see a 6 minute video on it at www.HeadachePrevention.com  I think that the low jaw seems to be much more relaxed and I can open my mouth further. The back part of the jaw still has aching pain which may be from getting used to the TNI device.

Based on my pain circulating from the top of  the left side of my head to the deep part of my throat Dr. K thinks  I have Atypical Facial Pain, ATFP .What is ATFP?. It is is a syndrome encompassing a wide group of facial pain problems.   The outlook seems  even worse than Trigeminal Neuralgia as some experts say that surgery is not usually a successful option for ATFP. It is usually treated with medication.  Darn!    You will find details about ATFP on website no. 4 of this compendium.

At the TNA  Conference in Florida Nov 10-14, 2005 Often  Dr. J  said that this often means that there is more than one blood vessel compressing more than one nerve if you are skilled in looking for it..  All should be corrected during the same time if one chooses an MVD procedure. I have heard other MVD neurosurgeon Dr. K.  state that he has never  seen more than one blood vessel causing a problem.  Now who do you believe.

My wife Rosemary and I attended the TNA  National Conference on Trigeminal Neuralgia November 11-14, 2004  at the Walt Disney World Orlando Hilton in Florida.  It  consisted of  some long days listening to the informative presentations  provided by about 50 doctors.  Enroute I discovered how true the information I had read how altitude change on an airplane can bring on more TN problems. Pain enroute was excruciating in the  pressurized cabin.  Also while I was at the conference I developed a full body rash.

On my return trip I increased my Tegretol dosage the day before and the day of travel as advised at the conference.  It decreased the  head pressure and increased my traveling comfort.  Enroute  hearing on my left side  went out at the same time the altitude was affecting my TN pain.  My hearing resumed after a nights sleep but 2 days later went out again prior to the return flight and did not return to normal in about 30 days..  I visited a ENT specialist DR. V  who determined that my pressure was not correct in my left ear and was affecting my hearing. Holding my nose and blowing heavily  with a closed mouth did not discharge the liquid in the ear area.  DR. V did a lancing procedure  which restored my left ear hearing.

 November 12, 2004 I  noticed the development.of a  body rash . On  Nov. 16, 2004 I reported the full blown body rash t to Dr. K.  His immediate response was to immediately  get off the Tegretol and up the Neurontin to cover this loss. When the rash disappeared  a new drug  Amytriptyline was prescribed starting with 10mg and increased to 30 mg. The Neurontin was up to 1200 mg/day.

About Jan. 7, 2005 while flossing my teeth I discovered that my top teeth would not line up with my bottom teeth. A dental visit on Jan. 11, 2005 with Dr. TR determined that  there is a good chance  that I have TMJ   (Temporomandibular Joint Disorder)  .  Yuk.  More pain and expense.  Phone calls to my insurance  company and a TMJ specialist office determined that it is not very likely that TMJ would be covered by insurance.  If you have any experience with TMJ please let me know.

Also if you have any experience with  anything about TN please contact me.  If you find a web page with valuable  information please send it to me and I will link to it from this website.    You can find this site again  by typing  the word "neuralgia" in backwards "aiglaruen" in Google. the next TNA  conference on TN will be in November  2006.  If you have Trigeminal Neuralgia I would highly  recommend that you and your spouse attend.  You will meet many others with your similar problem and will hear many Doctors speak about the latest research and treatment in TN. 

 Brian Nelson

bnelson@PartyTentCity.com 

 31 Gessner Rd. Houston, TX  713-467-3025,  Fax. 713-467-3192

 You are at.http://www.BrianNelsonConsulting.com\temporomandibular-joint-tmj\info-faq.htmlUD 08/19/2007 06:48:49 AM -0500 

This website  about Trigeminal neuralgIa. has pages 1, 2, 3 AND 4. Please Wait for the download time of a 1-2 minutes page.
This page was updated on 08/19/2007 06:48 AM -0500

Slide down for detailed information about TMJ on this page. 

Directory for TN websites

Temporomandibular-Joint-TMJ info faq Frequently asked questions.

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